Not a good day
We didn’t get the answers that we wanted to hear at the doctor’s today. The so-called “vascular malformation specialist” said that she thought that it is more of a hemangioma. That’s it. She took one look at her and wanted to move on, basically dissing her. I guess we won’t be her pet project after all. She did call Erik later in the day and schedule a meeting with a radiologist who will use an ultrasound to make sure that it actually is a hemangioma. Now, we have to wait until next week for that appointment, then the week after that we meet back up with her to hear the verdict.
I brought in all my notes and questions. She wasn’t impressed with that, stating that the information that I brought was from America where they “tell patients what they want to hear to make money”. I didn’t realize until after we left that the stats that I was using were from Australia. Why couldn’t I have looked down at the paper earlier? When I asked about the cortizone treatments (which I read should be administered as soon as possible for optimal results) she said that is only the very rare cases that receive treatment and doubted that Adrienne would be eligible for that. Then, when I asked my next question about the risks of flying with a hemangioma, she looked at me like I was crazy. She said that I couldn’t take her out of the country since she might be in treatment. WHAT!?!? You just said that she most likely wouldn’t get the treatment. Argh! When Erik asked if we would have to come into the hospital to get the treatment (if we would be so lucky), she said (shocked): “of course not! you could give it to her orally at home!” What!?!?! Why wouldn’t I be able to do that from Canada? Idiot!
So, we have to wait some more. In the meantime, I’ll be researching more on cavernous hemangiomas since that seems to be what the “doctor” thinks it is. At least, she didn’t just say: “let’s wait and see until next month”. I think I really would have lost it then.
Here is a picture of my supergirl after our appointment today. You can see that she isn’t pleased either. All this and she’s fighting a cold and having extreme tummy pain. She really is a superhero.
September 6th, 2008 at 10:09 am
That’s horrible!!!! What an awful awful woman!!!!! What the hell is wrong with her? I HATE doctors like that. Sorry, “doctors” like that, because it doesn’t really seem like she wants to do anything or does anything properly, she just wants to pass the buck to someone else. I don’t know what to say. I would be furious. Can you call or write to a superior to complain about her? The whole America crap is ridiculous. You aren’t American and your information is not American, not that it should matter. You could complain about her to a superior (and write a letter to her) that she has a problem with immigrants. I’ve run into this too. In fact, Max’s current baby nurse thing is the same way. She’s so rude and evil to me but if Måns talks, she is nice and respectful. Rowr!!! Horrible woman! “woman”
September 6th, 2008 at 11:06 am
OH. MY. GAWD. I am so impressed you remained calm - I think the “American” would have come out in me. First of all, just because it’s a ‘for pay’ system doesn’t mean people get diagnosed with diseases for the joy of it. It OBVIOUS that Adrienne has something going on and to not, at the very least, comfort you and make you feel better about the situation is unprofessional. While she may not agree with the way things are run elsewhere, a doctor’s appointment is certainly not the time to go preaching about it. Can you get a second opinion? I really like the staff at Sophia and I have two friends that work at St. Goran. Let me know, I’d be happy to ask.
September 11th, 2008 at 12:41 am
This is so horrible!!!! I’m going between wanting to punch that doctor to wanting to just weep for your poor little baby!
Any chance you can start on getting a second opinion?
This doctor sounds like a wack-a-doo!
Oh Erika, I don’t even know quite white to say except that I’m so sorry she’s going through this.
September 15th, 2008 at 8:59 am
parenting is hard enough without going through so much drama. i am sorry you are dealing with this - it must be so scary. keeps us up to date with any news… other than her eye drama, she looks like a beautiful, well-dressed baby. congrats to you both… hopefully you are keeping your sanity. remember you can always call, if you need to vent.
love, mel
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