What the Henkel, Padawan?

After waiting more than a week, we found out on Thursday that the next doctor’s appointment will be taking place the following Monday - that’s tomorrow! I am so happy that we didn’t have to wait long after receiving the notification, like I thought we would.

I’m expecting to get her started on some sort of treatment regime tomorrow, but also trying not to get my hopes up. Because we have to get the treatment through the oncology department, we might be dealing with a new doctor. It could turn out to be some sort of meet n greet where they just examine her eye and set up another time. I will scream if that happens.

I can’t believe how nervous I’m getting. I have butterflies in my stomach and I don’t think I’ll sleep much tonight. I’m not excited about the fact that we have to be in the hospital two hours before the appointment. Not sure why we have to be there so early, but it was in our instructions from the hospital.

I’ve done a lot of research on other babies who are getting propranolol for their hemangioma and a lot of them have been kept for observation at the beginning. This wasn’t mentioned to us by the doctors we saw a few weeks ago and that’s what makes me feel like tomorrow might turn out to be another preparation day. I wouldn’t mind staying in the hospital to be on the safe side, but I wouldn’t mind jumping in with both feet either. I just don’t know enough about the Swedish medical system to take a guess at which one it will be.

I’m also nervous that we are going to start her on medication that hasn’t been used much for this purpose. It’s only been since June that it was found to help treat hemangiomas, so I don’t have much to research to rely on. The results I have seen have been amazing. Some of the cavernous portions from these studies have disappeared within weeks.

As soon as the treatment starts, we’ll be keeping a journal and taking daily photos to try and keep track of her progress. Hopefully, we’ll be able to post a significant improvement over the next couple of weeks. But, of course, I’m getting ahead of myself again.

Wish us luck!

This entry was posted on Monday, October 20th, 2008 at 12:59 am and is filed under Health. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.